Archive for February, 2010

Title goes here?

February 20th, 2010

So the meeting with the MS Nurse was fine by all accounts. I went with the notion that I would start on Avonex as my first choice of DMT. well my first choice is Tysabri but I will have to play the waiting game on that one. So she talked me through the four choices of medication , and I ended up choosing one that I had totally discounted in my research. I want to start on Rebif purely because of the little gadget auto injector! The other do have the option of using an auto injector but you still have to work with needles as such in put the meds in the needle/mix the solution and so forth. Not with the Rebif!

It is a little computerised handheld that is no bigger than a mobile phone/MP3 player. The soultion is premxed in a little container which you place into the unit. The needle is just a little tip which comes in a little container that you slot into the bottom of the machine. It is fully automated and tells you how much meds you are injecting, when your last shot was etc. Each vial of solution lasts two weeks in the machine. Overall it is an amazing little gadget! The only downside as such is that you have to inject three times a week but it is a very small needle head and therefor it doesn’t have to go into the muscle as with the Avonex. All in all I figure it would be easier to work with the RebiSmart, yes I have to do it three times per week but it would be a bit more painfree that one deep muscle jab.They all do the same job in the end and the choice is left down to the patient , so it is all about what works for you and how it fits into your life.

I am feeling a bit more optimistic about having to use the DMT’s after talking with her. There is a waiting list of 13 weeks, so I am due to start them in May…

If it ain’t one it’s another!!

February 17th, 2010

Grrr..I just paid my hosting and domain renewal (for the ‘lead’ domain on the hosting) and it cost me £42 for the year. I then check my other email addy and discover to my dismay that my February Stamping Up order is due in. It will have to wait unfortunately, because I am literally bust until next week after paying for the domain etc.

I preorder a Spring Kit the other day as well and that cost me another £41 but that has already been taking from my bank account, hopefully towards the end of the week I can get my SU order!

Not much else happening other than me having another reading frenzy and waiting impatiently until tomorrows appointment with the MS Nurse..

Ups and downs

February 15th, 2010

I seem to be a little obsessed with the idea of getting Tysabri in favour of any other drug. I guess I’m seeing so many ‘ miracle recoveries’ from using the drug that I amvery much leaning to that. I am able to walk by myself,sure my balance is a little off kilter and I would like that corrected. I have to go see the MS nurse on Thursday to discuss options, which I think I may have mentioned a few million times already?

It’s half term here and they don’t go back until Wednesday and my head is already done in! It was nice having him at home until today, I think he is getting a tad bored actually but he doesn’t have long to go now!

I did something today that in all m years of cardmaking I have never done! I made a card from start to finish in one sitting! go me! I can’t take a picture because my camera battery is flat (typical) but nevermind!

I best log off because I have to make Will something to eat and then I do want to head off to bed and have a read!

Exciting stuffs all-round eh !