The CCSVI debate is raging onwards.The UK government has already dismissed it, just yesterday in Canada Two Liberal MPs are calling on Ottawa to provide $10 million in funding for research on a potential cause of multiple sclerosis called CCSVI, or: chronic cerebrospinal venous insufficiency.
Myself I don’t know. I feel like I am running out of time as far as my MS goes, one day when the UK gets to grips with this, it may be too late for me. On the other hand this procedure wasn’t available or made widespread so we didn’t know any better. No we do- does that make the situation better or worse?
As far as me goes- I got a letter to start start the Rebif on Wednesday. CHAOS.
I want the LDN , the script is in the works what do I do? WHAT DO I DO?
I have been advised by a good few Rebif users that my reaction is understandable and they have all gone through the same process. Take the Rebif they say, it will help stave off the progression just that little bit longer. The LDN helps with the symptoms including those given by taking the Rebif. A month after I start the Rebif I should start with the LDN, so that is the way I will progress for now until the CCSVI option becomes a reality.
I won’t lie- I am terrified at the prospect of taking DMD’s, but again I guess every Ms-er goes through this decision at some stage. So Physio on Monday, MS Nurse on Wednesday and Friday.
Damn this sucks!